Which ideas are best for promoting our drive to put MG on the map? Choose as many as you like, from the ideas below (poll 5096966)

Which ideas are best for promoting our drive to put MG on the map? Choose as many as you like, from the ideas below

Ask friends of our Facebook page "The YesWeCan CamperVan' to ask their friends to 'like' our page

Ask readers of this blog to subscribe, in order that we can tell potential sponsors how many readers we have

Create a promotional by-line and ask all internet friends to add it to their email signatures for 'June MG awareness month'

Tell people about 'June MG awareness month' on Facebook and this blog, and ask them to spread the word

Design and sell window decals and bumper stickers to promote MG awareness and fund the road trip expenses

Design and sell T shirts which say 'We're driving to put MG on the map'

Create a website specifically for the road trip and to explain more about MG (Myasthenia Gravis)

Set up a non-profit to attract donations and volunteers so money raised can create support groups for patients and greater public awareness

Other:

Vote View Results

Debbie Brogdon - 13 years ago

We need more local support groups. I live too far from one and trying to start one in my local hospital but meeting a lot of resistance. Healthcare workers do not understand MG, the medications I take, nor the rest that is needed. Mestinon is a blessing for me to be able to chew and swallow but when I have to go to the hospital, they do not understand that I need it prior to eating so I can chew and swallow.

Articles regarding MG need to go into newspapers so others understand what it is and why some people have slurred speech. I have teased and just say that I had too much alcohol to drink.

My vision has been affected and providing large font helps so much when I am not too tired and then the double vision kicks in. Luckily, I have a good doctor that added prism to my glasses and this has been a blessing.

Support is crucial and if others don't understand, how can they help? More information on MG needs to get to medical staff and people in the community.

Thank you for listening and maybe there will be a cure one day. :-)