I still drive occasionally!! Only short distances tho! I get very easily distracted or I zone out while driving. My fiance has yelled at me quite a few times to get my attention back on the road. I've come extremely close to going off the road into on coming traffic. I don't drive at night cause I get lost easily! My fiance does all the driving now unless, he's at work and I have Drs appts. It's tough!
Rita M - 7 years ago
I do drive, but with relapse I experience narcolepsy and am unable to drive during these time. I could fall asleep standing up during those times.
Miriam Curcio - 8 years ago
My family won't let me drive far or at night. I get lost at night. I can drive to church, therapy, and grocery store.
Arlene Applebaum - 8 years ago
I find myself fearing distance travel, (my family live an hour and a half away)! The trip is second nature but I tend to overstay with my grandkids and the night travel is a challenge. I don't want to rely on my husband every trip!
Sian Roberts - 9 years ago
I stopped driving in September 2014 during a relapse with numbness in my feet. I was advised not to drive until I had seen a neurologist. He gave me the go-ahead in March this year and I attended a Driving Assessment Centre which gave me the confidence to re-start driving. It's great!
Saliek - 9 years ago
WOW! Seems like, once again. It's not just me. Thanks everybody!
I still drive. But, like most of you, my brain fog gets the best of me. Some times. Travels to the most familiar places become the most undesireable tasks to me. I forget where I'm headed. I get agitated by the heat from the sun. I turn the AC on and soon get aggravated by the cold air. The crazy driving public is no help. I'm at my wits end with them. It's getting dark. Now, the bluriness becomes doubled and at times a huge strain on my eyes. I drive slow and far from the traffic ahead of me. I prefer to go places alone. It's easier and less embarassing. But my wife loves to travel. It's our secret. Don't tell her I hate driving. I just say I hate MS.
Summer - 9 years ago
I still drive, not at night if I can help it because my eyes like to play tricks on me. If I go long distances, I have to stop and take stretching breaks due to my ms and rls. One has to know their own limits but it is also hard to ask for help all the time, I don't wanna feel like the burden I know I am sometimes.
David Cole - 10 years ago
I had MS for 22yrs and have always been abled to drive. I am now on an adapted car with hand controls. My licence is only valid for 3 years and each time i get tested!!!
Carrie - 10 years ago
I still drive, but I am very uncomfortable when I do. I drive only when I have to and I don't drive at night.
kelly murphy - 10 years ago
I can legally still drive but I prefer the bus now. When I drive I get sooo disorientated and confused I domn't know where I'm going anymore or how to get to a place I've gone to a million times and gods forbid I have to detour or change how I am used to get there. Not to mention the internal road rage at idiots around me! I get too stressed
I actually tried to drive last night for the first time in a long time. I went to my daughter's house which is 10 mins away and back roads. I can't drive in moderate to high traffic areas at all. On the way I started having an attack. Not bad, but my face started drawing and my vision get "cloudy"(for lack of a better word) when this starts happening. It continued after getting to her house and actually got worse. She ended up having to drive me home. Really felt defeated at the time. I just didn't feel clear headed at all.
Myrna - 10 years ago
I can drive still, but i do get lost - occasionally. I have to bring printed instructions & a map to help me to get to my Dr's appts. My memory is not very good for these trips so I keep the above-mentioned items printed out, laminated & in my journal which also accompanies me to my appts. Its embarassing to me but its better than having to get someone to take me to my appts. Thank God the pharmacy, supermarkets, and clothing stores are nearby. My anxiety level goes up a hundred percent e'ery time I have togo outside of my "comfort zone". A bright Sunny day is a hassle for me since my eyes are very sensitive (Glaucoma) to light. Dusk poses yet another challenge as everything is "shadowy" for me, @ that time of day. Its best for me to get my errands done earlier in the day as my energy-level is at its best. I LOVE a challenge but this is not what I had in mind!!LOL! Living my life, thats what I do...by any means possible.
Carla Pearson - 10 years ago
I drive, but not at night. I don't have any problems driving, My doctor said I'm fine to drive. My left leg is the worse, but I don't need my left leg to drive. Please, if you drive be more careful.
Carla Pearson - 10 years ago
I drive, but not at night. I don't have any problems driving, My doctor said I'm fine to drive. My left leg is the worse, but I don't need my left leg to drive. Please, if you drive be more careful.
Kathleen Skaggs - 10 years ago
I have SPMS, COPD, and Epilepsy...I have between 8-10 seizures a day. I have stopped driving on my own due to the hazard it would cause for everyone around me. I stopped driving 4 yrs ago, my doctor finally agreed with me 2 yrs ago. Hmmm just imagine all the accidents I could have been in during that 2 year span. It wasn't worth it to me to continue driving and have so many lives at the mercy of my condition.
Susan - 10 years ago
I drive with Hand Controls that operate the gas and brake. I have my Service Dog and a GPS also as I get lost super easy now.
Kimberly - 10 years ago
I do drive. But occasionally, if I'm driving more than 30 minutes, I have to pull over, because I feel like I'm going to pass out or I pull over because I get lost. (In my own neighborhood), I have lived in this area all my life.
Fredia - 10 years ago
When I was first diagnosed was 1994, I was in a bad place. I could do nothing for myself. Dressing (no) eating (no) walking (no) bathing (no) talking (no) using the bathroom (no). My husband left me with 3 children. Then my oldest left. My 9 year old. would take on the roll of care giver, and she went to school.months went bye and friend true friends were coming around. After about 5 years I met the man of my dreams. We were married in 1999 and he worked with me and I stopped needing the urine tubs, he taught me how to use my bladder again. then he thought me to use my legs to take tiny steps again. Then he let my 9 year daughter stop feeling like she needed to take care of me. It was his turn. In 2001 he bought me my own car and taught me how to drive again, it was not easy it was very hard but now I drive but am still unable to walk in stores, and that is when we use a wheelchair or if the stores have scooters we go.
Laura Higham - 10 years ago
Bad Double vision when I was diagnosed, always saw two of everything! Have had both eyes operated on with amazing results. Jumping eyes cannot be fixed though. Very thankful I have a Chauffeur! my Hubby. Loss of independence though :-)
Tori Downing - 10 years ago
I have trouble with blurry vision, pain, spasms, weakness in both legs, left foot drop, and falling asleep at the wheel for no reason at all. You would think I have narcolepsy, but I take Adderall XR on the days that I drive, so it should not be happening. Even my neuro isn't sure why that's occurring. Scary for sure.
stacey mesheau - 10 years ago
Sorry my risk of driving is low to moderate only some mistakes made but after 20 some yrs of driving I am sure bad habits are developed!!
Marilyn Roberts - 10 years ago
Because MS has taken half the vision from my right eye, my bifocal vision is nearly destroyed and its probably dangerous to drive. Besides the roads aren't safe anyway. So I don't feel like being yet another threat!
stacey mesheau - 10 years ago
I am still able to drive .I am road tested every 2 yrs by the Dept Of Motor Vehicles and they became aware oof my diagnosis only due to a dispute wwith my neghbnour Not even related to driving. But I comply only due to my diagnosis.Dx for last 11yrs. Am unable to walk due to lower extremety weakness which is distracting tto me only if I try to walk.After 5 yrs it has recently been brought uop again by physiotherapy and physician running the Rehabilitation Program I am enrolled in. I was tested for distraction by occupational therapist with results of my ability to drive as low to moderate. Surprisingly there is a lower result of none, no errors.Who is in this group I do not know. I have had no accidents while driving and experience no arm weakness or weakness in my right leg while seated or distracted attention. It becomes an issue of distraction,weakness only if I am trying to walk but seated is less work for y body as I need not to concentrate so hard on simply stading.That is the hardest thing I will need to do, therefore to me driving is not an issue.I am a nurse and feel I have good insight into my capabilities and limitations. I believe the testing from the DMV is sufficient and feel the Rehab Dr. has misplaced concern. If I felt unsafe I would not do it especially with my child in the vehicle. Most people who are a danger driving do not get retested or license removed until it is too late and an accident has already occurred or an incident causing harm or death to others.It should be mandatory testing for everyone across the board at a certain age or all with certain diagnosis. Independence is the goal of Rehab program but what becomes of a person who they feel should not be driving because of the severity of their disability and are not severely disabled enough to qualify for help??As I said I am fully aware of any disabilities and compensate very well being only 42 yrs old..Just does not support the goal of Independence.
I still drive occasionally!! Only short distances tho! I get very easily distracted or I zone out while driving. My fiance has yelled at me quite a few times to get my attention back on the road. I've come extremely close to going off the road into on coming traffic. I don't drive at night cause I get lost easily! My fiance does all the driving now unless, he's at work and I have Drs appts. It's tough!
I do drive, but with relapse I experience narcolepsy and am unable to drive during these time. I could fall asleep standing up during those times.
My family won't let me drive far or at night. I get lost at night. I can drive to church, therapy, and grocery store.
I find myself fearing distance travel, (my family live an hour and a half away)! The trip is second nature but I tend to overstay with my grandkids and the night travel is a challenge. I don't want to rely on my husband every trip!
I stopped driving in September 2014 during a relapse with numbness in my feet. I was advised not to drive until I had seen a neurologist. He gave me the go-ahead in March this year and I attended a Driving Assessment Centre which gave me the confidence to re-start driving. It's great!
WOW! Seems like, once again. It's not just me. Thanks everybody!
I still drive. But, like most of you, my brain fog gets the best of me. Some times. Travels to the most familiar places become the most undesireable tasks to me. I forget where I'm headed. I get agitated by the heat from the sun. I turn the AC on and soon get aggravated by the cold air. The crazy driving public is no help. I'm at my wits end with them. It's getting dark. Now, the bluriness becomes doubled and at times a huge strain on my eyes. I drive slow and far from the traffic ahead of me. I prefer to go places alone. It's easier and less embarassing. But my wife loves to travel. It's our secret. Don't tell her I hate driving. I just say I hate MS.
I still drive, not at night if I can help it because my eyes like to play tricks on me. If I go long distances, I have to stop and take stretching breaks due to my ms and rls. One has to know their own limits but it is also hard to ask for help all the time, I don't wanna feel like the burden I know I am sometimes.
I had MS for 22yrs and have always been abled to drive. I am now on an adapted car with hand controls. My licence is only valid for 3 years and each time i get tested!!!
I still drive, but I am very uncomfortable when I do. I drive only when I have to and I don't drive at night.
I can legally still drive but I prefer the bus now. When I drive I get sooo disorientated and confused I domn't know where I'm going anymore or how to get to a place I've gone to a million times and gods forbid I have to detour or change how I am used to get there. Not to mention the internal road rage at idiots around me! I get too stressed
I actually tried to drive last night for the first time in a long time. I went to my daughter's house which is 10 mins away and back roads. I can't drive in moderate to high traffic areas at all. On the way I started having an attack. Not bad, but my face started drawing and my vision get "cloudy"(for lack of a better word) when this starts happening. It continued after getting to her house and actually got worse. She ended up having to drive me home. Really felt defeated at the time. I just didn't feel clear headed at all.
I can drive still, but i do get lost - occasionally. I have to bring printed instructions & a map to help me to get to my Dr's appts. My memory is not very good for these trips so I keep the above-mentioned items printed out, laminated & in my journal which also accompanies me to my appts. Its embarassing to me but its better than having to get someone to take me to my appts. Thank God the pharmacy, supermarkets, and clothing stores are nearby. My anxiety level goes up a hundred percent e'ery time I have togo outside of my "comfort zone". A bright Sunny day is a hassle for me since my eyes are very sensitive (Glaucoma) to light. Dusk poses yet another challenge as everything is "shadowy" for me, @ that time of day. Its best for me to get my errands done earlier in the day as my energy-level is at its best. I LOVE a challenge but this is not what I had in mind!!LOL! Living my life, thats what I do...by any means possible.
I drive, but not at night. I don't have any problems driving, My doctor said I'm fine to drive. My left leg is the worse, but I don't need my left leg to drive. Please, if you drive be more careful.
I drive, but not at night. I don't have any problems driving, My doctor said I'm fine to drive. My left leg is the worse, but I don't need my left leg to drive. Please, if you drive be more careful.
I have SPMS, COPD, and Epilepsy...I have between 8-10 seizures a day. I have stopped driving on my own due to the hazard it would cause for everyone around me. I stopped driving 4 yrs ago, my doctor finally agreed with me 2 yrs ago. Hmmm just imagine all the accidents I could have been in during that 2 year span. It wasn't worth it to me to continue driving and have so many lives at the mercy of my condition.
I drive with Hand Controls that operate the gas and brake. I have my Service Dog and a GPS also as I get lost super easy now.
I do drive. But occasionally, if I'm driving more than 30 minutes, I have to pull over, because I feel like I'm going to pass out or I pull over because I get lost. (In my own neighborhood), I have lived in this area all my life.
When I was first diagnosed was 1994, I was in a bad place. I could do nothing for myself. Dressing (no) eating (no) walking (no) bathing (no) talking (no) using the bathroom (no). My husband left me with 3 children. Then my oldest left. My 9 year old. would take on the roll of care giver, and she went to school.months went bye and friend true friends were coming around. After about 5 years I met the man of my dreams. We were married in 1999 and he worked with me and I stopped needing the urine tubs, he taught me how to use my bladder again. then he thought me to use my legs to take tiny steps again. Then he let my 9 year daughter stop feeling like she needed to take care of me. It was his turn. In 2001 he bought me my own car and taught me how to drive again, it was not easy it was very hard but now I drive but am still unable to walk in stores, and that is when we use a wheelchair or if the stores have scooters we go.
Bad Double vision when I was diagnosed, always saw two of everything! Have had both eyes operated on with amazing results. Jumping eyes cannot be fixed though. Very thankful I have a Chauffeur! my Hubby. Loss of independence though :-)
I have trouble with blurry vision, pain, spasms, weakness in both legs, left foot drop, and falling asleep at the wheel for no reason at all. You would think I have narcolepsy, but I take Adderall XR on the days that I drive, so it should not be happening. Even my neuro isn't sure why that's occurring. Scary for sure.
Sorry my risk of driving is low to moderate only some mistakes made but after 20 some yrs of driving I am sure bad habits are developed!!
Because MS has taken half the vision from my right eye, my bifocal vision is nearly destroyed and its probably dangerous to drive. Besides the roads aren't safe anyway. So I don't feel like being yet another threat!
I am still able to drive .I am road tested every 2 yrs by the Dept Of Motor Vehicles and they became aware oof my diagnosis only due to a dispute wwith my neghbnour Not even related to driving. But I comply only due to my diagnosis.Dx for last 11yrs. Am unable to walk due to lower extremety weakness which is distracting tto me only if I try to walk.After 5 yrs it has recently been brought uop again by physiotherapy and physician running the Rehabilitation Program I am enrolled in. I was tested for distraction by occupational therapist with results of my ability to drive as low to moderate. Surprisingly there is a lower result of none, no errors.Who is in this group I do not know. I have had no accidents while driving and experience no arm weakness or weakness in my right leg while seated or distracted attention. It becomes an issue of distraction,weakness only if I am trying to walk but seated is less work for y body as I need not to concentrate so hard on simply stading.That is the hardest thing I will need to do, therefore to me driving is not an issue.I am a nurse and feel I have good insight into my capabilities and limitations. I believe the testing from the DMV is sufficient and feel the Rehab Dr. has misplaced concern. If I felt unsafe I would not do it especially with my child in the vehicle. Most people who are a danger driving do not get retested or license removed until it is too late and an accident has already occurred or an incident causing harm or death to others.It should be mandatory testing for everyone across the board at a certain age or all with certain diagnosis. Independence is the goal of Rehab program but what becomes of a person who they feel should not be driving because of the severity of their disability and are not severely disabled enough to qualify for help??As I said I am fully aware of any disabilities and compensate very well being only 42 yrs old..Just does not support the goal of Independence.